Waiting for a physical or mental health diagnosis can be one of the most difficult things a person experiences. Getting a diagnosis can involve waiting to see a specialist doctor, waiting for tests and waiting for lab results to come back.
The uncertainty caused by waiting can leave you feeling in limbo and you may have physical symptoms to deal with while you wait for an answer.
If you are waiting for a possible life-changing diagnosis, the wait can be incredibly stressful. It's important to remember you are not the only one in this position and it's common to feel lots of emotions, like anger, frustration, anxiety, impatience or depression.
By young people, for young people
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If there's an adult or friend you can trust, have a chat with them about your questions or worries. They might be able to put your mind at rest or give you some useful advice. You can also speak to your GP for advice.
If you live in Norfolk:
If you're 11-19 you can text ChatHealth on 07480 635060 for anonymous and confidential advice from a health professional. ChatHealth is available Monday to Friday 9am - 5pm.
You can also contact the Norfolk Healthy Child Programme by calling Just One Number on 0300 300 0123. Our opening hours are 8am-6pm Monday-Friday (excluding bank holidays) and 9am-1pm on Saturdays.
If you live in Waveney:
You can call the Suffolk School Nursing service on 0345 607 8866 or email childrenshealth@suffolk.gov.uk.
The Patient Advice and Liaison Service (PALS) at the hospital you are being treated at will be able to help you access more information about waiting times and listen to any concerns you have over your treatment.
The National Youth Advocacy Service (NYAS) is a service offering mental health advocacy to young people who are being cared for under the Mental Health Act. They offer advice from a freephone helpline on 0808 808 1001 available Monday - Friday 9am - 8pm and Saturday 10am - 4pm.
Kooth offers online counselling, advice and emotional well-being support for anyone aged 10-18, seven days a week until 10pm.
Understanding the Autism diagnosis and assessment process.
Waiting for your referral to Child and Adolescent Mental Health Services (CAMHS) can feel like a slow process. Where can you find support while you wait?
It can sometimes take time for your doctor or medical team to fully understand what’s happening.